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Understanding Adrenal Insufficiency
Insights from WAPO’s recent interview with Professor Henri Timmers, a leading endocrinlolgist at Radboud University Medical Centre in the Netherlands and Chairperson of the Radboud Center of Expertise for Adrenal Disorders. Read more
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Zoom In to Our Support Group Meetings
Join our Acromegaly NZ online support group for a safe space to connect, share experiences, and receive encouragement. Next meeting: Sunday 14 December 2025, 7:00pm. Register to attend. Read more
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🖊️ Keeping a Health Journal
Keeping a health journal is essential for managing Acromegaly. It helps track symptoms, supports mental wellbeing, enhances appointment effectiveness, and creates a valuable personal health record over time. Read more
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Hormones & Aging with Acromegaly
Dr. Sandra Aleksic discusses aging and hormonal changes in individuals with pituitary disorders, emphasizing tailored treatment strategies and proactive lifestyle approaches to enhance their quality of life. Read more
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Pharmac to Fund Lanreotide from March 2025
PHARMAC will publicly fund lanreotide (Mytolac) in New Zealand starting 1 March 2025 for acromegaly, improving treatment access and allowing easier transitions from octreotide. Read more
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Communicating Life with Acromegaly
Acromegaly affects both individuals and their loved ones, causing communication barriers, emotional struggles, and physical discomfort. Open communication, education, and patience are essential for maintaining supportive relationships and intimacy. Read more
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Living Well with Acromegaly
Managing acromegaly involves building a partnership with healthcare providers, embracing a healthy lifestyle, tackling symptoms directly, and seeking specialised care when needed for personalised support. Read more
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Triumph Over Adversity
Frances, despite health challenges, excelled at the recent Harbour Crossing event in Auckland. Her inspiring journey encourages strength, unity, and perseverance. Read her story in The Valley Profile. Read more
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Navigating a New Diagnosis
If you’ve been diagnosed with acromegaly, know that you’re not alone. Educate yourself, ask questions, seek support, be proactive, and focus on quality of life to navigate this journey with resilience. Read more
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Regional Coffee Catchups
Members can look forward to regional coffee catchups, organised by volunteer coordinators throughout Aotearoa, in honour of Rare Disorders Month. Updates will be shared via the private Facebook group and email. Read more
Acromegaly NZ
Support & education for those with acromegaly & their families
Acromegaly NZ 