Acromegaly NZ

Support & education for those with acromegaly & their families

Welcome

Whether you’re newly diagnosed, a caregiver, or someone seeking to understand more about this rare condition, you’ve come to the right place. Acromegaly NZ provides you with a comprehensive online resource dedicated to raising awareness and providing support for individuals affected by acromegaly.

What is a Acromegaly?

Acromegaly is a rare endocrine disorder characterised by the excessive production of growth hormone (GH). This overproduction typically results from a benign tumour (adenoma) of the pituitary gland. The condition leads to gradual changes in appearance and may cause various health complications if left untreated.

Community & Support

We believe in the power of community. Connect with others who understand what you’re going through, share your experiences, and find comfort in knowing you’re not alone. We offer various opportunities for you to engage with others through our regular support groups, social media and special events.

Living with Acromegaly

Discover the different treatments options including medication, surgery, and radiation therapy, and strategies for coping with the physical, emotional, and practical challenges of living with acromegaly.

Updates & Insights

Our blogs are a great way for you to stay informed about the latest developments in acromegaly research, treatment advancements, and our community events.

“Quality of life is the key to managing acromegaly. Ask questions, look for information, and be proactive in managing the impact of your condition.”

  • Understanding Adrenal Insufficiency

    Understanding Adrenal Insufficiency

    Insights from WAPO’s recent interview with Professor Henri Timmers, a leading endocrinlolgist at Radboud University Medical Centre in the Netherlands and Chairperson of the Radboud Center of Expertise for Adrenal Disorders.

  • Zoom In to Our Support Group Meetings

    Zoom In to Our Support Group Meetings

    Join our Acromegaly NZ online support group for a safe space to connect, share experiences, and receive encouragement. Next meeting: Sunday 14 December 2025, 7:00pm. Register to attend.

  • 🖊️ Keeping a Health Journal

    🖊️ Keeping a Health Journal

    Keeping a health journal is essential for managing Acromegaly. It helps track symptoms, supports mental wellbeing, enhances appointment effectiveness, and creates a valuable personal health record over time.

  • Hormones & Aging with Acromegaly

    Hormones & Aging with Acromegaly

    Dr. Sandra Aleksic discusses aging and hormonal changes in individuals with pituitary disorders, emphasizing tailored treatment strategies and proactive lifestyle approaches to enhance their quality of life.